What’s Wrong With Autism Speaks?

Untuk masyarakat Indonesia mungkin hanya sedikit yang mengenal Autism Speaks, sebuah lembaga yang katanya mendukung kepedulian terhadap autisme. Belakangan ini saya mendengar suara sumbang tentang Autism Speaks, namun masih belum terlalu peduli karena ini terjadi disana, bukan di negara tercinta.

Namun ketika pagi ini membaca salah satu blog yang sering saya baca, barulah saya merinding. Apa yang dijelaskan pada blog Emma’s Hope Book baru memberikan efek, karena dijelaskan disini bahwa Autism Speaks berkerja sama dengan Judge Rotenberg Center. Pertama kali saya mendengar tentang Judge Rotenberg Center adalah ketika ada kasus pengaduan dari orangtua anak autis yang menitipkan anaknya disana, lalu mendapatkan bahwa anaknya di terapi dengan terapi kejut listrik, yang bukannya membuat kondisi anak mereka membaik tapi malahan jatuh memburuk.

Saya tidak memahami alasan Autism Speaks bekerja sama dengan lembaga Judge Rotenberg Center tersebut, namun setuju dengan pendapat banyak orang di US sana: Autism Speaks bukan lagi lembaga yang mendukung kepedulian pada penyandang autisme.

Please read this blog.

Emma's Hope Book

When my daughter was diagnosed, we heard about Autism Speaks.  Their message supported everything else we were reading and hearing about autism, so I didn’t spend much time thinking about what they were saying or who they were involved with or even what they were doing with all the money they received.  In fact, we gave money to them during those early years.  When friends and family asked who they should donate money to, I encouraged them to give to Autism Speaks.

“Autism Speaks has a long and continued pattern of exclusion of Autistic voices from its work on autism. As an organization without a single Autistic person on its board of directors, Autism Speaks is the last group our nation’s leaders should be entrusting with the creation of a “national plan to address autism”. ~ ASAN (Autistic Self Advocacy Network)

“No reasonable person would dare suggest that an organization…

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